My husband and caretaker has been out of town all week on business leaving me to handle all the things around here that he usually does. This week has been a good one for my self-esteem and independence because I discovered I am capable of more than I believed possible. On trash day I gathered all the garbage and slepped the cans back and forth to the front of the house. I did all the grocery shopping for the week and managed to get a completely full and very heavy laundry basket upstairs. These might seem like very small accomplishments that most take for granted but because of my lack of mobility, I can and do appreciate these minor victories in my life. It's nice to be taken such good care of by my husband but it feels really good to be self sufficient.
It's the Monday after a long weekend away from home and boy do I have lots to accomplish on my to do list today. We just got back late last night from visiting our daughter and her soon to be husband in cold Minneapolis. Wedding planning, shopping and trying great restaurants in the Twin Cities was oh such fun but it's back to reality today. Everybody else went to work today but what I do is work too even if I don't get paid for it. Even though the laundry has piled up and the number of things I have to get accomplished today keeps growing, I keep fighting the urge to just sit here and read a good book. I am always wiped out after traveling so I also need to remember to take it easy on myself today keeping in mind that it's not the end of the world if everything doesn't happen by the time I go to bed.
I very rarely if ever have more than just a glass of wine when out in public. I already walk like I’m drunk 😵 so there’s no need to make the situation worse by actually drinking too much. It’s so much fun to hang out with friends but it seems like most social situations revolve around alcohol. We were asked to meet our good buddies out on St. Patrick’s Day this past weekend but the thought of dealing with the inebriated masses was overwhelming to me. Drinking too much can make multiple bathroom trips a necessity, yet another reason to avoid crowded bars. We don’t want our sweet and understanding friends to give up on us or stop including us in on the festivities but sometimes the thought of leaving the comfort and convenience of home is just too much to bear.
I way overslept today getting a late start on everything I had planned but that's ok. I'm trying to listen to what my body wants so after a long and stressful Monday, it must be telling me to take it easy today. The problem is that I feel so guilty for not getting more accomplished which is nonsensical. I am fortunately in a place in my life that I don't have to be anywhere at anytime as everything that I believe has to happen today can wait until tomorrow.I need to practice what I preach, appreciate that I feel rested and realize that nothing is more important than taking care of me.
As a mother of 3 myself, I can't imagine the fear and feelings of helplessness my own mother has gone through since my diagnosis of MS You couldn't tell from this happy pose but I remember being in such a funk on this trip to Arizona but convinced that my mom could make it all better like she always did. She taught me to smile through the pain and get on with life so I don't know any other way to be. I am incredibly thankful that my mom always taught me perseverance in the face of adversity. My mother's life has not always been easy either but she continues to handle every situation with grace and dignity showing me the very best example of how to age elegantly..
Feeling really bad about myself this morning because I finished a sleeve of the Girl Scout thin mint cookies last night before bed. Not sure what they put in those deliciously crunchy, chocolatey goodies but I can never have just one. It's a perfect day to start over again by making healthier food choices. I know I always feel better when I'm watching what I eat so it's back to my healthy smoothie this morning with hopes that no more cute, little girl scouts come to our door this weekend.
As often as time and finances allow, I treat myself to a massage. Unfortunately though, getting a massage is not just a guilty pleasure but is necessary to keep my body loose and stretched out. People with MS struggle with muscles tightening up and further hindering their movement. It's probably my poor posture from holding a cane but I've had back issues for as long as I can remember so a deep, therapeutic massage is just what the doctor ordered although my insurance doesn't cover it. There are many massage groupons and deals out there so treat yourself to a massage because everyone deserves to feel better.
I know it's a necessary evil but I have mixed emotions about going to my physical therapy appointments twice a week. PT is an important part of keeping up with my strength and mobility but I am always wiped out when I get home rendering me useless for the rest of the day. The physical therapists at Body Gears www.bodygears.com where I go are experts at treating multiple sclerosis but unfortunately do not cut me any slack, pushing me beyond my limits most days. I appreciate their knowledge, expertise and prodding while I'm there but am so glad when I am done for the day.
We make a point of trying to see our granddaughter play basketball, soccer or cheer whenever we can. Some of the venues where she performs are difficult to get into or sitting on the bleachers is hard on the back or the heat is sweltering or there are no close bathrooms but I am not complaining at all. We spent years watching our older kids participate in all their activities so we consider it the ultimate privilege to be able to do it all over again with our grandchildren. Life has become a "spectator sport" for these bleacher bums at this stage of our life but we love the view.
This may still be a controversial topic but hopefully most people agree by now that the use of cannabis to treat medical conditions like mine are an acceptable treatment option. The State of Illinois passed the Compassionate Use of Medical Cannabis Pilot Program in 2013 but this program is scheduled to expire in 2020. I have always struggled with debilitating side effects from almost every symptom management drug I have tried. This time last year, I applied for and received an Illinois Medical Cannabis Registry Card. This is a rather lengthy and costly process starting with an educational seminar and then a long, involved session to fill out all the paperwork, get a picture taken, get finger printed and go through a background check. I also had to pay a visit to my neurologist to have him sign a certification form which he did on the down low since the hospital he is associated with does not condone this "criminal behavior." I just got back from my local dispensary pharmacannis.com where once a month I pick up gummies or edibles that I take before bedtime for spasticity in my legs. Most people with a condition or illness that qualifiy for medical cannabis do not want any sympathy but simply the dignity to seek treatment that will help them live their best life.
Hello World. This is a blog we created to give any one affected by MS in any way a constructive way to communicate with others going through the same challenges.