I see all my friends and family in different locales and I want to be right there with them but traveling is difficult for anyone especially if you need assistance of any kind. Airports can be chaotic, stressful places where everyone is in a hurry and people can be rude. I'll never forget being in this country's busiest airport, Hartsfield-Jackson Atlanta International year before last for one of my niece's basketball tournaments. I was in my scooter waiting patiently for my turn in line to order at a Potbelly Sandwich Shop.A man and his mother were behind me in line discussing what they were going to eat. Out of nowhere, this man starts yelling at me because he felt I wasn't moving fast enough, I guess. Another couple saw this all go down and started yelling at this rude man for being so insensitive. The argument started getting heated and suddenly I had lost my appetite. I so badly want to be independent so having complete strangers coming to my rescue because all they see is a woman in a scooter being yelled at is humiliating. I don't want to be pitied in any way so this whole interaction was horrifying and I took off while these people continued to scream at each other. I'm on my way out of town again tomorrow with hopes that everything goes smoothly at the airport because I know that once I get to my destination, that I will have a blast.
Sunday is Funday
We’re so blessed to have our granddaughters close by so we can watch them grow up. Today we did one of our favorite activities together, making cookies. It’s fun to see how they’ve progressed in the culinary arts over the years. The girls read all the instructions, measured out all the ingredients and even cleaned up after themselves after cooking. I know they won’t always want to hang out with their grandma so I’m going to cherish this time. Enjoy your time with loved ones because you might miss the simple things that make life so enjoyable.
I am convinced that exercise is crucial for anyone but especially if you're living with MS. I remember one of the first questions I asked my doctor so many years ago when I was first diagnosed is if I could still exercise. He said "No" because the common misconception at the time was that too much physical activity would fatigue the muscles and overheat the body. Fortunately I did not listen to my doctor's advice then and still exercise as much as I can, at least 3 or 4 times a week, sometimes more depending on my schedule. One of my favorite forms of movement is yoga which I have been practicing for years, most recently at The Healing Triad in Bloomingdale, Illinois : thehealingtriad.com. They have a gentle yoga class taught by Beth that is just my speed. I am usually one of the youngest participants but I really appreciate the accommodation of a chair in case I need to sit during class. If you don't use it, you'll lose it so get moving.
As I sit here for the second day in a row without a car, I can't help but be so thankful that 1) I can still drive a car 2) I have places to go and people to see 3) and that the world is not going to come to an end because I'm homebound for a couple of days. I really have to force myself to drive long distances or places I've never been before because my reflexes and eyesight aren't as sharp as they used to be. So I take a deep breath and venture out as much as possible to take advantage of my independence and the gift of connection that transportation gives me. 'Everything in life is somewhere else, and you get there in a car." E.B. White
I have this nagging fear almost every day that I shouldn't be blogging. How pretentious of me to think that anyone would be interested or care what I have to say but then I remember what my true intentions for this blog are. If I am able to help even one other person either living with MS or someone who cares for someone living with this disease, then it is all worth it. Most days I feel like I may be the only one benefitting from this blog because writing and creating it can be so cathartic. So thank you for humoring me while I continue to conquer my fears and hopefully help more than myself in the process.
I have been doing equine therapy or hippotherapy for 2 years now at Equestrian Connections equestrianconnection.org in Lake Forest, Illinois. It takes me a good hour of solid driving to get there every Wednesday but it is so worth the long trip. Equine therapy can help disabled people like myself with a number of issues like cognition, muscle tone, balance and gait not to mention the confidence that comes from controlling a 2000 pound animal. Besides all these great benefits, I continue to take this long journey every week because the staff are incredibly positive, nice people especially my riding instructor, Colette. In fact, Colette leads an MS self help group at the facility every Wednesday morning at 11 where I met some really amazing people just this last week. If you or your loved one are looking for an exciting form of therapy, I would highly recommend riding horses.
Yesterday was supposed to be a celebration of LOVE but instead we learn of another senseless school shooting in Florida. Up and down our block trees were wrapped in red and black ribbons in honor of the 10 year anniversary of the NIU tragedy when our neighbors lost their precious daughter. The world can feel scary, hopeless and out of control some days but those are the exact times we need to be positive examples of the generosity and compassion of the human spirit. How we react to days like yesterday is the only thing we can control.
My dad died over 17 years ago but hardly a week goes by when we don't get a sign that he's watching over our family. His favorite modus operandi is a dime and my sister, daughter and I like sharing stories about where we found the latest one and why he may have sent it. My husband thinks I am crazy but it gives me great comfort to think he is watching out for me. I feel his quiet encouragement when life gets difficult because he was always my biggest supporter. I hadn't been diagnosed with MS for very long when he passed but I know he felt helpless and confused about the whole thing. Little did he know then how much solace he would bring me even after he was gone.
After wiping the tears away and thinking about all the lessons This is Us, the popular tv show has to offer, I can't help but be thankful for my "messy life." The broad appeal of this show is understandable because it so cleverly intertwines how everyone in the family has their own unique perspective to all that life throws at them. It's an important reminder that our friends and family are all going through their own personal struggles and messy lives but it doesn't mean they care for you any less. Be compassionate and understanding to your loved ones challenges and you will receive that compassion and understanding back 10 fold.
Hello World. This is a blog we created to give any one affected by MS in any way a constructive way to communicate with others going through the same challenges.