I'm always searching for a new, holistic way to relieve pain which can cause debilitating stress and anxiety if not managed properly. My good friend recommended this simple combination of acupressure and psychology called Tapping or EFT (emotional freedom technique) developed by Nick Ortner, NY Times Best-Selling author of "The Tapping Solution" for all kinds of issues we may be experiencing because of an illness or injury. Mr. Ortner takes a different approach to pain management getting to the underlying reasons why "physical pain can often times serve and benefit us "which can in turn keep that pain in place if we don't release it. I really appreciate learning about new ways to deal with pain to live a fuller, more rewarding life and am anxious to share this discovery with you.
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This weather is brutal and maddening for anyone but especially so for those of us with mobility issues. Last week was tough because our driveway was a skating rink making it hazardous to even walk out to the mailbox or bring the trash cans in from the curb. The next day it snowed so much that I couldn't get out of my garage until my sweet neighbor came over to plow. I feel so lucky to live in a community where neighbors, friends and family look out for one another but am acutely aware that many in need of assistance aren't as fortunate as I am. My public service announcement for this record-setting cold snap is to be as aware. accommodating and active a neighbor as possible because even the smallest gesture on your part could be life changing for someone in need.
Just got home from an amazing milestone birthday celebration in Texas with my family, wiped out from the adventure but so thankful for the experience. Although large, crowded events are challenging when you have mobility issues, one of the highlights of the weekend for sure was going to the Justin Timberlake concert. I always feel a little guilty for whomever accompanies me because it is inevitably a hassle getting situated in these big venues and the AT&T center in San Antonio was no exception. When we got there I had to check my scooter in at customer service and be taken by wheelchair to my seat which turned out to be up many steep stairs. With my sisters and brother in tow, we spent the next 45 minutes trying to get more accessible seating. It all worked out in time to catch the show but I think the whole encounter was yet another eye opener about the difficulty and embarrassment of needing special accommodations at a public event. People with disabilities just want to be engaged in life without being singled out but so often the thought of all the maneuvering required to stay involved can be intimidating. Try not to get overwhelmed with the inevitable inconvenience because you might miss out on making an unforgettable memory.
There's a new movie about a disabled man and his caregiver called "The Upside." There is also a debate about why an actual disabled person wasn't cast into the lead role instead of the popular actor Bryan Cranston. I can understand both sides of this argument agreeing with Bryan that it is an actor's job to pretend to be different people while he did admit there was "a dearth of opportunity for actors with a disability." I have to admit excitement to finally see a major motion picture that will highlight some of the challenges that disabled people deal with on a daily basis. I think shining a light on this underrepresented portion of our society will only create more acceptance and may lead to a better understanding and ultimately more compassion which the world could definitely use right about now.
As we celebrate our 30th wedding anniversary today, I feel like I hit the jackpot with my husband. I'm so grateful that he stuck around when i was diagnosed with MS because all too often, that's not the case. More men specifically leave their partner with one study showing a 21% increase in divorce rates after this diagnosis. As anyone who has tied the knot knows, marriage can be hard work under the best of circumstances but add a life-changing illness to the mix and it's no wonder that the statistics for staying together are bleak. It was especially hard for us within a year after my diagnosis as I had a high paying career that I eventually couldn't keep up with. The hit to our income was a tough pill to swallow at first but we adjusted. We were paying so much in childcare with 2 little ones so saving that cost with me being home helped a little but I tease my husband about coming home everyday after I quit working with the same refrain : " You look like you're feeling better. Are you ready to go back to work yet?" It took him a little longer to accept our new lifestyle but once he did, he's been nothing but supportive. He's helpful but not hovering, attentive but not suffocating and adventurous with a constant awareness of my limitations.....he just gets it. I feel so lucky today and everyday to have him in my corner through all of life's ups and downs
I like to spend every New Year’s Day reading the previous year’s journal entries but since I started this blog last February, I spent this afternoon going back over the 77 posts I created for MSFamilyAffair. I am proud that I took on this new challenge, hopeful that someone other than myself has been enlightened in some small way. Although the goal of this blog is to help others dealing with MS or other health issues, the truth is that this whole experience has been both cathartic and rewarding for me in ways that were unimaginable a short year ago.I didn't realize that I had so much information to share or how exciting it would be to hear about the impact my blog posts would have on my readers. I am beyond humble and grateful for yet another opportunity to make a difference in someone's else's life and cannot wait to see where this blog will take me in 2019.
Hello World. This is a blog we created to give any one affected by MS in any way a constructive way to communicate with others going through the same challenges.